As many of you know, my dear friend Margaret's son, Michael was diagnosed with Tuberous Sclerosis Complex (TSC) in 2007. TSC is a devastating genetic disorder that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, liver, skin and lungs. People with TSC develop epilepsy, autism, and learning and behavioral problems. Currently there is no cure for TSC, but ongoing research will have pave the way for treatments and therapies.
These tumors were found in Michael's brain and kidneys. The tumors in his brain have caused him to have regular seizure activity which has caused developmental delays. Fortunately his kidneys have been functioning properlyand he is periodically monitored. As a result of a strict modified Atkins diet recommended by his doctors, Michael has been seizure free for one year! He is progressing well and beginning to reach many milestones!
I will be walking on April 10th in the Step Forward to Cure TSC walk-a-thon in honor of Michael. I would love for you to join TEAM MICHAEL and walk with me and the rest of the team. If you aren't able to attend, the walk, you can still make a donation by visiting my page below.
On behalf of Michael's family and myself, thank you so much for your paricipation and support. It means so much!!
2 comments:
I'm on like Donkey Kong.. already made my donation. Go team Michael!
Hi Keri! Got your link from Kelly's Korner and I was so glad to see that TS was included by someone! My son is 2 (today actually) and he has TS as well!
He is affected in his brain and kidneys too, with some developmental delay-mostly in speech. Would love to hear from you and your friends.
bschwaigert23@yahoo.com
Post a Comment